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The North Carolina Registry for Brain Health has compiled the following resource list for families who need information and ways to get help for their loved-ones:
Support programs for people with dementia and caregivers
ALZHEIMER’S ASSOCIATION
24/7 Helpline: 800-272-3900
ALZHEIMER’S ASSOCIATION BRAIN HEALTH INFORMATION
ALZHEIMERS.GOV
A federal government website that contains a wide range of information, resources, and support for people with Alzheimer’s disease and related dementias, their caregivers, and their families.
ALZHEIMER’S LOS ANGELES
website
Clear, concise caregiver information and tips.
AMERICAN ASSOCIATION OF RETIRED PERSONS (AARP)
Information about dementias and caregiver resources.
AARP’S GLOBAL COUNCIL ON BRAIN HEALTH
Translates critical scientific research into brief and easy-to-understand materials about brain health and simple steps one can take to improve it.
ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION
Information about diagnoses, navigating healthcare, caregiving challenges, planning for the future, and finding support for the most common type of dementia in those younger than 60.
CAREGIVER INFORMATION AND SUPPORT
Information from the University of California–San Francisco.
CENTER FOR OUTREACH IN ALZHEIMER’S, AGING, AND COMMUNITY HEALTH
A center dedicated to enhancing the quality of life for African-Americans and vulnerable communities living with Alzheimer’s and related dementias, their families, and caregivers through education and community support.
CLEVELAND CLINIC HEALTHY BRAINS
Six pillars of brain health: lifestyle changes that can have an impact on your brain health.
DEMENTIA ALLIANCE OF NORTH CAROLINA
Offers compassionate support and assistance to those who are living with or caring for individuals with all stages and types of dementia.
DUKE DEMENTIA FAMILY SUPPORT PROGRAM
Offers confidential phone or email consultations, education, and (currently virtual) support groups for caregivers and people living with dementia. Free of charge and no affiliation with Duke is needed.
ELDERCARE LOCATOR
Nationwide service that connects older Americans and their caregivers with trustworthy local support.
FAMILY CAREGIVER ALLIANCE NATIONAL CENTER ON CAREGIVING
The NCC serves as a central source of information on caregiving and longterm care issues for policy makers, service providers, media, funders, and family caregivers throughout the country.
LEWY BODY DEMENTIA ASSOCIATION
Supporting those affected by Lewy body dementias, their families, and caregivers through outreach, education, and research.
MEMORYCARE
Independent, community-based, charitable organization serving adults with cognitive impairment and their families using a model that integrates education and support of caregivers with medical care of those with dementia.
NATIONAL INSTITUTE ON AGING
Information about Alzheimer’s disease and related dementias, news, tips, and resources for caregivers and healthcare professionals.
NATIONAL STROKE ASSOCIATION–VASCULAR DEMENTIA
Information about vascular dementia—what it is, treatments, and tips on managing the diagnoses and caring for someone living with the disease.
NORTH CAROLINA DIVISION OF AGING AND ADULT SERVICES
Information about state programs for older adults; click links for “Alzheimer’s” and “Family Caregiver Support.”
PROJECT CARE
State-funded, dementia-specific support program for individuals who directly care for loved-ones with Alzheimer’s disease or related dementias.
UNIVERSITY OF CALIFORNIA–SAN FRANCISCO MEMORY AND AGING CENTER
Information about types of dementia, their causes, disease processes, and treatments.
VA CAREGIVER SUPPORT
In-home and out-of-home programs for care partners of veterans.